Critical news for the endometriosis community, straight from the hard work of the medical practitioners who specialize in endometriosis! AAGL has just announced a critical update to the International Classification of Disease (ICD) diagnosis codes for endometriosis, codes that had not been updated in more than 40 years. The update includes more than 100 new diagnosis codes to better characterize the distribution and depth of endometriosis. This is an enormous win for our collective mission to advance the care, treatment, and research of endometriosis and we congratulate friend of EndoFound Dr. Ted Lee as the AAGL liaison who spearheaded this momentous undertaking and change that will improve the lives of so many with endometriosis. Read on about what this means exactly for patients, including how—although these ICD diagnosis codes are not the same as CDP codes—this historic step could very well lead to much-needed change in the latter as well!

It’s great news that the ICD diagnosis codes have finally been updated for endometriosis. But what does that mean for patients? Dr. Ted Lee, President of AAGL and the person who spearheaded the assessment of revising these codes, joined EndoTV this week to explain everything you need to know about the new ICD diagnosis codes for endometriosis.

Earlier this week, New Jersey Assemblywoman Shanique Speight (NJ- 29th Legislative District) introduced eleven bills to create legislation addressing menstrual disorders, including endometriosis. Joining the press conference were journalist, producer, and host of EndoTV, EndoFound Ambassador Diana Falzone, and family physician and EndoFound Interim Executive Director Dr. Tracey Haas. You can learn more about the bills and watch the press conference below. Make sure to add your name to the petition, too! We've got boots on the ground in several states now, working to pass legislation to improve the lives of millions suffering from endometriosis.

Have you always wanted to know what goes on behind the scenes in the operating room for laparoscopic excision surgery? Now you can hear from medical student and endometriosis patient Jenna Dvorsky on every detail, from prep to excision techniques. Jenna’s worked with minimally invasive gynecologic surgeons at the endometriosis center in Pittsburg, and given she’s also an endo patient who had surgery before having access to the details of the room itself, she wants to raise the curtain so everyone considering surgery can be better prepared. The more we know, the better we can keep advocating for ourselves and others.

Thank you to all our supporters who use Amazon Smile each time they shop! Haven’t selected a charity on Amazon yet? You can contribute to advancing cutting-edge endometriosis research and advocating for endo legislation by selecting EndoFound as your charity on Amazon Smile. EndoFound receives a .5% donation from all qualifying purchases and it's so easy! You must shop at smile.amazon.com to donate.

New goods in the EndoFound Shop to celebrate Pride! We encourage these tees’ wear anytime of the year to bring awareness to the fact that it’s not just women who live with endometriosis—and often nonbinary and trans people experience an even longer time to get an endometriosis diagnosis. Order your endo gear by the end of the month and for 20% off your order. Just enter ‘pride20’ at checkout!

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