Our mission is to increase endometriosis awareness, fund landmark research, provide advocacy and support for patients, and educate the public and medical community.
Founders: Padma Lakshmi, Tamer Seckin, MD
×
Donate Now

Latia Lee

Latia Lee

Registered Nurse, EndoFound Patient Advisory Committee
Bay Shore, NY

Latia Lee is a Registered Nurse with a strong passion for patient advocacy. She was diagnosed with Stage 4 Endometriosis in 2017 after suffering from debilitating pain for 23 years.  It was through research and self-advocacy that Ms. Lee self-diagnosed herself and finally received the gold standard treatment, which is excision surgery. Latia strives to bring awareness to this very debilitating disease and empower women to seek the proper medical treatment they desperately need and deserve. “Early detection and treatment is so essential with endometriosis. No woman should have to wait 23 years for diagnosis and treatment of Endometriosis. This is unacceptable.”

Multiple articles and videos sharing Latia’s Endometriosis journey have been published on the EndoFound website and Seckin Endometriosis Center. Women need to know that they are not alone and that their feelings are real and valid.

Like many endometriosis patients, Latia struggled with infertility. After a 4-year infertility journey, she welcomed a healthy baby girl in 2023.  “I can’t stress the importance of self-advocacy when you are suffering from infertility and loss. After multiple early losses and implantation failure, my gut told me that the cause was immune-related. I consulted a reproductive immunologist and changed to a clinic that was more progressive and did immune protocols. This was my third infertility clinic. As a patient, you must find a clinic where you are seen and heard and not dismissed.

Lastly, as a patient with three excision surgeries covered by their insurance company, she offers guidance and advice in case management to help other women achieve this monumental goal.



Latia Lee Discusses Her Pregnancy Journey

Latia Lee Discusses Her Pregnancy Journey

Latia Lee started to try to get pregnant in July 2019. Nearly four years and three clinics later, she is due to have her first child in July. As Lee discusses in this episode of Let’s Talk Period on EndoTV with Diana Falzone, advocating…

How to advocate with your insurance - Latia Lee

How to advocate with your insurance - Latia Lee

Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 How to advocate with your insurance Latia Lee, Moderator: Melissa Boudreau Melissa Boudreau: Hello everybody, and welcome to this advocacy session with…