EndoFound supports the Research OutSmarts Endometriosis (ROSE) Study at Northwell's Feinstein Institute for Medical Research. ROSE seeks to identify genetic markers associated with endometriosis by characterizing various tissues found in women with the disease and those without it. We are hopeful that this classification will allow for the development of a diagnostic tool to be used in the clinical setting. We are thrilled by the progress ROSE has made and cannot wait to see more of its outcomes!
About the Study:
If you’re a woman living with endometriosis, or you suspect you might have it and are scheduled to have surgical treatment, you may be eligible to participate in the ROSE Study. Your immediate family (siblings, parents and children), if they do not have endometriosis, may also be eligible to join the study. ROSE Study researchers are exploring what causes endometriosis and if a better treatment can be developed.
To participate in the study you must be:
- Older than 18 years
- Not Pregnant or breastfeeding
- We are recruiting: endo-diagnosed, endo-symptomatic and controls
Each Participant will be asked to:
- Share medical/demographic information
- Answer questions about how endometriosis affects her life
- Provide a blood sample (from the arm)
- Offer a sample of menstrual flow that can be collected at home using a simple procedure; this collection is optional
- Allow ROSE Study researchers to collect excess endometrial tissue samples from a past or future surgery
The following are some recent media stories:
- https://www.everydayhealth.com/endometriosis/endometriosis-researchers-attempt-to-develop-an-early-noninvasive-way-to-diagnose-disease/?dm_i=1Y9P,6OS16,PK7WOC,QOIHY,1
- https://themighty.com/2020/01/rose-study-endometriosis-diagnostic-test/
- https://www.today.com/health/endometriosis-awareness-month-women-share-emotional-toll-condition-t211673
If you would like to learn more about how you may play a part in improving the understanding of endometriosis, please contact a research nurse at 516-562-ENDO (3636) or ROSE@northwell.edu, or visit us at ResearchOutSmartsEndo.org.
Disclaimer:
Endofound is a charitable entity and is not committed to matching the indirect cost rates of the U.S. government or other entities. We believe our policy to allow no more than 10% of any Endofound research grant funding to go towards indirect costs is consistent with that of many private foundations and certain government entities that have a flat rate that caps the amount an applicant institution can charge. Endofound's policy helps ensure furtherance of our charitable purpose.
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The Rose Study Research Team
