EndoFound's UpEndo Coalition is a powerful voice for everyone touched by endometriosis. EndoFound's advocacy team is committed to speaking up about the policy needs of the endometriosis community. It plays a critical role in helping to secure federal funding for endometriosis research and education. EndoFound is the voice on Capitol Hill, in statehouses around the country, and with federal agencies for those who have endometriosis.
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In 2019, EndoFound's two-year advocacy initiative with New York State resulted in the first law in the United States to make materials on menstrual health and endometriosis available to school districts and medical practitioners statewide.
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In 2020, EndoFound and the bipartisan Congressional Endometriosis Caucus worked to raise awareness of endometriosis, resulting in a historic doubling of funding for endometriosis research at the National Institute of Health (NIH).
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In 2022, EndoFound launched the UpEndo Coalition to educate the public and Congress about the health implications of endometriosis and ensure policymakers are advancing research funding and other policy priorities.
Learn about our policy positions. These policies help protect patients, educate the general public and ensure that every patient receives the same standard of care.
Announcing the 2022 Bipartisan Endometriosis CARE Act
We’re thrilled to be working with the House Endometriosis Caucus and Representatives Lauren Underwood (IL-14), Nikema Williams (GA-05), Jenniffer González-Colón (PR-At Large), and Alma Adams (NC-12) who introduced the bipartisan Endometriosis CARE Act. This legislation would fund investments needed to advance endometriosis research, develop and expand access to treatments, and promote public awareness. You can find more information about the Endometriosis CARE Act of 2022 here, as well as the bill here.
"Thank you to Representatives Lauren Underwood and Nikema Williams and the House Endometriosis Caucus for creating the Endometriosis CARE Act and carrying forward this long-overdue correction to how we regard women's reproductive health issues. I started EndoFound thirteen years ago with my surgeon, Dr. Tamer Seckin, so we could create awareness and support the millions of individuals in the U.S. who have endometriosis. We need to make sure that ALL individuals with endometriosis have access to the information and care they need and I believe that the Endometriosis CARE Act will do just that." Padma Lakshmi / EndoFound Co-Founder
EndoFound Virtual UpEndo Congressional Briefing
Tuesday, May 17, 12 pm - 1 pm EDT
On Tuesday, May 17 join us for our EndoFound Virtual UpEndo Congressional Briefing and Hill Day with our co-founders, Padma Lakshmi and Tamer Seckin, MD, Corinne Foxx, and other special guests. It will be broadcast on EndoFound’s YoutubeTV channel EndoTV. We ask that you support this effort by reaching out to your elected officials. Here is a link to the UpEndo 2022 Citizen Advocacy Congressional Day of Action Guide to help you.
Virtual UpEndo Citizen Advocacy Coalition Briefing
On Wednesday, May 11, 2022, EndoFound hosted the first Virtual UpEndo Citizen Advocacy Coalition Briefing with EndoFound Ambassador and former Congresswoman Abby Finkenauer and EndoFound Ambassador and EndoTV host Diana Falzone. Thank you to all who attended.
The coalition pursues high-visibility opportunities, including Congressional hearings, federal agency and White House initiatives, and media opportunities and events. In addition, the coalition focuses explicitly on Congressional committees that have jurisdiction over issues of interest to the coalition, such as the House and Senate Health Appropriations Subcommittees and authorizing committees.
To join the UpEndo Coalition and participate in this meeting, please contact Jeanne Rebillard, Director of Communications & Government Relations, at jeanne@endofound.org.
