On Sunday, March 18, 2018, women with endometriosis from the tri-state area gathered at NYC's Einhorn Auditorium inside Lenox Hill Hospital for our Patient Awareness Day 2018: Living Your Best Life with Endo. The day centered around three themes. "Exploring Hidden Pain," looked at mental and sexual health, as well as the biases that keep endo invisible to the public. The second session, "Management of Endometriosis Symptoms" covered everything from diet and exercise to pelvic floor therapy and acupuncture. And last but not least, "What's Next For Endo: Medically and Beyond" explored new research studies and diagnostic tests on the horizon.
Abby Norman signed copies of her new memoir, Ask Me About My Uterus, and staff presented an ENPOWR Award to our volunteer educator, Stephanie Satchell Morris. We also had a handful of groups educate our attendees including My Endometriosis Team, Celmatix, and Flutter, to the research studies Citizen Endo and The Rose Study, as well as medical tech company Lumenis. The day brimmed with hope as women met one another, asked questions, and took home useful resources.
Check out our photo gallery and lecture videos below!
Patient Awareness Day 2018:
Living Your Best Life With Endo
Sunday, March 18, 2018, (8am-5pm) Einhorn Auditorium (131 E76th st) at Lenox Hill Hospital, NYC
PHOTOS
PROGRAM
Moderators
Sandra Gelbard, M.D. & Karli Goldstein, D.O.
| Time | Topic | Speaker |
|---|---|---|
| 8:00am - 8:30am | Registration and Breakfast | |
| 8:30am -8:45am | Where are we now with endometriosis? | Tamer Seckin, M.D. |
| SESSION I: Exploring Hidden Pain | ||
| 8:50am - 9:05am | A “Hystery” of Endometriosis through Review of Historical Medical Literature | Abby Norman |
| 9:10am - 9:25am | Endometriosis through a Biopsychosocial Lens | Seth Berger, M.D./M.B.A |
| 9:30am - 9:45am | Panic and Endometrial Pain Syndrome | Arnold Wilson, Ph.D. |
| 9:50am - 10:05am | Endometriosis and Sexual Functioning | Carli Blau, LMSW, MEd., MA., Ph.D. Candidate |
| 10:10am - 10:25am | How Clinical Gender Bias Prevents Diagnosis and Treatment - and What You Can Do About It | Meghan Cleary |
|
10:30am - 10:55am Keynote |
Why and how can ACOG help? From a Historical Perspective to the Future | Harry Reich, M.D. |
| 11:00am - 11:10am | Session I Discussion | |
| The ENPOWR Award 2018 | ||
| 11:15am - 11:30am | How do adolescent girls and boys perceive symptoms suggestive of endometriosis among their peers? Findings from focus group discussions in New York City | Courtney Harris |
| 11:35am - 11:45am | ENPOWR Volunteer Award Presentation |
Nina G. Baker, MPH Award Recipient: Stephanie Satchell Morris |
| SESSION II: Management of Endometriosis Symptoms | ||
| 11:50am - 12:05pm | Eating for Endo | Jessica Murnane |
| 12:10pm - 12:40pm |
Lunch Abby Norman’s Ask Me About My Uterus Book Signing |
|
| 12:45pm - 1:00pm | Fertility workup and preservation in patients struggling with endometriosis | Tomer Singer, M.D. |
| 1:05pm - 1:20pm | Enhancing Fertility with Chinese Medicine in Women with Endometriosis | Mary Sabo, L.Ac, DACM |
| 1:25pm - 1:40pm | Uncovering the Black Box of Pelvic Pain: Understanding the Role of the Pelvic Floor | Allyson Shrikhande, M.D. |
| 1:45pm - 2:00pm | What is Pelvic Floor Physical Therapy: Self-Help Tips and A Guide to Finding an Experienced PT | Amy Stein, DPT, BCB-PMD |
| 2:05pm - 2:20pm | Spinal Interventions for Pelvic Pain | Gerard DeGregoris, M.D. |
| 2:25pm - 2:40pm | Endo Warrior One: Finding your inner warrior through yoga to battle endometriosis | Brandilee Coon |
| 2:45pm - 2:55pm | Break | |
| 3:00pm - 3:10pm | Session II Discussion | |
| SESSION III: What’s Next for Endo: Medically and Beyond | ||
| 3:15pm - 3:30pm | DotLab: The first non-invasive test for aiding in the diagnosis of endometriosis | Juliana Ansari, Ph.D. |
| 3:35pm - 3:50pm | The Citizen Endo Project: Phendo Update | Noemie Elhadad, Ph.D. |
| 3:55pm - 4:10pm | Approaches to diagnosing, curing, and preventing endometriosis in the post-genomic era | Piraye Beim, Ph.D. |
| 4:15pm - 4:25pm | Session III Discussion | |
| 4:30pm - 4:45pm | Closing Remarks | Karli Goldstein, D.O. |
*Subject to change
Speakers:
Juliana Ansari, Ph.D.
DotLab
Piraye Beim, PhD
Founder and CEO, Celmatix
EndoFound Board Member
Seth Berger, M.D./M.B.A.
Psychiatrist
Carli Blau, LMSW, MEd, MA, PhD Candidate
Licensed Sex and Relationship Therapist
Meghan Cleary
Writer, Speaker, Advocate, and Founder of Bad Periods
Brandilee Coon
Certified Yoga Teacher
Gerard DeGregoris, MD
Director of Education and Research, Manhattan Spine and Pain Medicine, NY
Noémie Elhadad, PhD
Chair, Columbia University Biomedical Informatics
Courtney Harris
George Mason University's Department of Global and Community Health
Stephanie Satchell Morris
ENPOWR Award Recipient
Jessica Murnane
Author Know Your Endo and One Part Plant Cookbook; Founder of Know Your Endo
Abby Norman
Science writer and author of ASK ME ABOUT MY UTERUS
Harry Reich, MD
Honorary Medical Director Emeritus and Senior Medical Advisor to EndoFound
Mary Sabo, L.Ac, DACM
Doctor of Acupuncture and Chinese Medicine
Tamer Seckin, MD
Attending physician Lenox Hill Hospital, Founder and President of Endometriosis Foundation of America
Allyson Shrikhande, MD
Medical Director, Pelvic Rehabilitation Medicine & Volunteer Faculty,
Lenox Hill Hospital, NY, Chair,
Medical Education Committee, International Pelvic Pain Society
Tomer Singer, MD, MBA
Medical Director, Shady Grove Fertility New York
Amy Stein, DPT, BCB-PMD
Founder, Beyond Basics Physical Therapy
Arnold Wilson, Ph.D.
Lecturer of Psychiatry, Columbia University School of Medicine, NY,
Training and Supervising Psychoanalyst at the Institute for Psychoanalytic Training and Research
