International Patient Conference 2021: The Path Towards A Cure

VIDEOS

The Path Towards A Cure:
Connecting Patients with Science

Every year, the Endometriosis Foundation of America hosts a patient conference designed to equip patients with all the tools and information they need to live their best lives with endometriosis. This year, we’re delighted to partner with The International Society for Gynecologic Endoscopy (ISGE) on March 19-21 to bring you the 2021 Global Patient Conference: The Path Toward a Cure.

The virtual conference will be offered in several different time zones and will include panels by experts in fields ranging from extrapelvic endometriosis and fertility to mental health and nutrition. We believe that living with endometriosis requires a collaborative and interdisciplinary effort that prioritizes the patient's voice. We are excited to continue spotlighting patients who will take the virtual stage to tell their stories and share their toolkits for advocacy, management, and support.

Patient Day was created for and inspired by endometriosis patients and we invite you to share this day with your loved ones and support network. Together we can seek the information and support that the endo community deserves.

Speakers

Lida Ahmady, LAc

Acupuncturist and Traditional Chinese Herbalist

Zara Altbach

Endo Patient

Mike Armour, PhD, BHSc BSc (Hons)

Senior Research Fellow | Higher Degree Research Coordinator

Merve Aypak

Endo Patient

Kim Bendheim

Endo Patient

Shan Biscette, MD

Assistant Professor, Dept OB-GYN, and Women's Health

Deborah Bush, MNZM QSM

Chief Executive Endometriosis New Zealand Director, EPP Coaching World Endometriosis Society Board Trustee

Winnie Chan

EndoFound Patient Advisory Committee

Alison Chemla

Endo Patient

Sarah Choi, FRANZCOG

Gynaecologist and Advanced Pelvic Surgeon

Margaret Cianci

Endometriosis Foundation of America

Michael Dahan, MD

McGill University in Montreal, QC, Canada

Michael East, M.B.B.S, FRCOG, FRANZCOG, MAOG, MRMed

Advanced Endoscopic Surgery

Diana Falzone

EndoFound ambassador and Executive producer for Endo TV

Simone Ferrero, MD, PhD

Associate Professor of Obstetrics and Gynaecology, University of Genova, Italy

Victor Gomel, MD

Professor Emeritus in the Department of Obstetrics and Gynecology, University of British Columbia

Tracey Haas, DO

Clinical Instructor, University of Washington School of Medicine, EndoFound Board of Directors

Anna Hagood

Endo Patient

Nikki Hartzoulakis

Endo Patient

Kym Jackson

Endo Patient

Neil Johnson, MD

Professor of Reproductive Health, Gynaecologist and REI Subspecialist, President of the World Endometriosis Society

Judy Joo

Chef, Restaurateur, Author and TV Personality

Shaheen Khazali, MD

Centre for Endometriosis and Minimally Invasive Gynecology (UK)

Kathleen King

Endo Patient

Lori Konecni

Endo Patient

Padma Lakshmi

Actor, Writer, Producer, EndoFound Founder

Brian Levine, MD

CCRM New York Fertility Clinic (USA)

Li Ma, MD

Associate Consultant, Division of Benign Gynaecology, Department of Obstetrics & Gynaecology, National University Hospital

Debbie Madigan

Endo Patient

Christine Madigan

Endo Patient

Dan Martin, MD

EndoFound Scientific and Medical Director

Zaher Merhi, MD

Medical Director, CEO, Founder of Rejuvenating Fertility Center (RFC)

Doris Murimi

CEO at Endo Sisters East Africa Foundation

Jessica Murnane

Author Know Your Endo and One Part Plant Cookbook; Founder of Know Your Endo

Laura Payne, PhD

Director of the Clinical and Translational Pain Research Laboratory at McLean Hospital

PROGRAM

	Friday, March 19/Saturday March 20 7 PM - 10 PM EST PacificAsia/US	Sunday, March 21 - 11 AM - 3 PM EST Americas- EuropeAfricaMiddleEast	London 3-7 pm Capetown 5-9 pm Rome 4-8 pm Cairo 6-10pm Istanbul 6-10pm Tel-Aviv 6-10 pm
	Moderating Chairs Honorary Chair Dr. Martin & Dr. Seckin Harry Reich, MD, Victor Gomel, MD
7:00 - 7:01 7:01 - 7:03 7:03 - 7:05	Intro - Margaret Caspler Cianci, Executive Director Welcome from Founders Co-Founder Padma Lakshmi Co-Founder, Dr. Tamer Seckin Why science is important to patients with endometriosis		11:00 - 11:01 11:01 - 11:03 11:03 - 11:05 Dr. Seckin screen share
	What is going on down there?
7:05-7:12 (no Q&A)	Live: What causes Endometriosis, the science behind the symptoms? DR. SECKIN, DR. MARTIN	Live: When Does Endometriosis Become a Disease? DR SECKIN, DR. MARTIN	11:05 - 11:12 Dr. Seckin Screenshare
		My Endo Story Margo Davies	4 mins
	Adolescents & Familial Endometriosis
7:12 - 7:32	LIVE Trust These Teens: Early Detection is the Prevention Moderators: Deborah Bush Dan Martin, MD Tamer Seckin, MD Panelists: Anil Sharma, MB Patrick Yeung, MD Mike Armour, PhD Anna Hagood	LIVE Trust These Teens: Early Detection is the Prevention Moderators: Dan Martin, MD Tamer Seckin, MD Tracey Haas, MD Panelists: Simone Ferrero, MD Shan Biscette, MD Lane and Neve Rechan Meredithe Rechan Charlotte Woska Anna Hagood	11:12 - 11:31 Dr. Martin screenshare 4 mins
			11:31 - 11:32 Dr. Seckin or Margaret intro Madigan video
		Pre-recorded Christine & Debbie Madigan (Canada)	11:32 - 11:37
7:32 - 7:35	Basics of Endo Amira Quevedo		11:37 - 11:40 (LIVE Dr. Seckin provide highlights,Dr. Seckin to share screen and play portions of video)
	Patients for Advocacy and Policy Change
			11:40 - 11:41 Dr. Seckin or Margaret intro Kathleen King video
7:35 - 7:37		Kathleen King (Ireland)	11:41 - 11:45
			11:45 - 11:47 Dr. Seckin intro Dr. Haas
7:37 - 7:44	Pre-recorded: How to Talk to Your Doctor About Endometriosis Tracey Haas, MD	LIVE How to Talk to Your Doctor About Endometriosis Tracey Haas, MD	11:47 - 11:57
7:44 - 7:45			11:57 - 11:58 Dr. Seckin intro Judy Joo
7:45 - 7:55	Pre-Recorded Judy Joo	Live “Judy’s Journey” Judy Joo	11:58 - 12:08
			12:08 - 12:10 Margaret intro Doris
7:55 - 8:00	My Endo Story Doris Murimi	Pre-recorded: Doris Murimi (Kenya)	12:10 - 12:20

		LIVE What does endo belly have to do with painful sex: “Let’s talk about sex, seriously!” * Moderator: Tamer Seckin, MD Panelists: Karen Robinovitz Nikki & Erik	12:20 - 12:30 (5 mins discussion, 5 mins Q&A)
	“Converting Pain to Power” Psychology of Pelvic Pain & Quality of Life
			12:30 - 12:31 Margaret intro Merve
		LIVE Merve Aypak	12:31 - 12:36
			Dr. Seckin intro Dr. Wilson
		LIVE Combating Anxiety and Depression Arnold Wilson 5 mins summary of presentation, 5 mins Q&A	12:36 - 12:46 (including Q&A, moderated by Dr. Seckin)
			Margaret introduce Endo story
8 - 8:08 (20 minutes)	Pre-Recorded Self-Compassion: Essential When Quality of Life is Affected By Endometriosis Hanne Vedsted-Hansen +++HAVE PAPER AND PEN READY FOR THE EXERCISE IN THIS PRESENTATION	My Endo Story	2 mins
8:08 - 8:10			12:46 - 12:47 Margaret intro Hanne
8:10 - 8:20	LIVE Coping with Pain: Brief Skills Training Laura Payne 5 mins summary of the presentation, 5 mins Q&A	Pre-Recorded Self-Compassion: Essential When Quality of Life is Affected By Endometriosis Hanne Vedsted- Hansen	12:47 - 1:02 (20 mins) LIVE Q&A with Hanne (5 min)
	Complementary Management Cannabinoids, Acupuncture & Diet
8:20 - 8:22			1:02 - 1:05 Dr. Seckin introduce Dr. Armour’s video
8:22 - 8:40	LIVE Medicinal Cannabis and other non-pharmaceutical management strategies for endometriosis Mike Armour, PhD	Pre-Recorded: Medicinal Cannabis and other non-pharmaceutical management strategies for endometriosis Mike Armour, PhD	1:05 - 1:23
8:40-8:41			1:23 - 1:25 Dr. Seckin and Judy Joo intro Endo Friendly Foods
8:41 - 8:51	Live: Endo Friendly Foods Jessica Murnane Moderator: Diana Falzone	Live: Endo Friendly Foods Winnie Chan Lida Ahmady Jessica Murnane Moderator: Judy Joo	1:25 - 1:45 (including 5 mins Q&A)
	Not So Rare: Endo of Remote Sites Complex Multi Organ Surgery of Bowel, Bladder, & Beyond involving Chest, Kidney, and Neuropathies
8:51 - 8:52			Dr. Seckin introduce Dr. Khazali
8:52 - 8:56	Pre-Recorded: Michael East, MD Ilioinguinal nerves	Pudendal & Sciatic Nerves Shaheen Khazali, MD	1:45-1:50
			Dr. Seckin introduce Dr. Goldstein and the panel
8:56 - 9:10	LIVE PANEL Moderators: Deborah Bush Tamer Seckin, MD Panelists: Michael East, MD Sarah Choi, MD tanya raymond zara altbach	LIVE PANEL Moderators: Karli Provost Goldstein, DO Panelists: Shaheen Khazali, MD Smitha Vilasagar, MD Lori Konecni Tanya Raymond	1:50 - 2:10
9:10 - 9:11			2:10 - 2:11 Margaret intro Ditte’s video
9:11 - 9:16	Dearne Richards	Ditte Nørgaard Sørensen (Denmark)	2:11 - 2:15
	FERTILITY A Conversation with Patients and Physicians
9:16-9:17			2:15 - 2:16 Dr. Goldstein intro Kym’s video
9:17 - 9:25	LIVE Miracles or Magic Kym Jackson Story	Miracles or Magic VIDEO Kym Jackson LIVE Alison Chemla Childless not by Choice LIVE Kim Bendheim	2:16 - 2:21 Kym 2:21 - 2:22 Dr. Goldstein intro Alison 2:22 - 2:27 Alison 2:27 - 2:28 Dr. Goldstein intro Kim 2:28 - 2:33 Kim Bendheim

9:25 - 9:55	LIVE PANEL Moderator: Karli Provost Goldstein, DO Panelists: Sarah Choi, MBChB Victor Gomel, MD Neil Johnson, MD Brian Levine, MD Zaher Merhi, MD Why do endometriosis cause fertility problems? When is infertility a sign for endometriosis? Egg retrieval, Should we rush? Customised IVF Protocols for Endo Patients Fertility Preservation for Adenomyosis and Endometriosis Ovarian and Uterine Sparing Reproductive Surgery	LIVE PANEL Moderator: Karli Provost Goldstein, DO Panelists: Michael Dahan, MD Victor Gomel, MD Brian Levine, MD	2:33 - 2:55 (including 5 mins Q&A)
9:55 - 10:00	Conference Wrap-Up Tamer Seckin, MD Margaret Caspler Cianci	Conference Wrap-Up Tamer Seckin, MD Margaret Caspler Cianci	2:55 - 3:00

Video Gallery / Virtual Patient Conference 2021

Disclaimer: The opinions shared by each of our panelists and speakers belong to each of them respectively and
may not accurately reflect the beliefs of the EndoFound organization as a whole.

Speakers

Lida Ahmady, LAc

Laura Payne, PhD

PROGRAM

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